Typ A Zentrum des ZSEER
The ZSEER's A Center is located at Kussmaulallee 4 in 91054 Erlangen. It supports and coordinates interdisciplinary activities in patient care, research, and teaching in the field of rare diseases with regard to early detection, diagnosis, therapy, aftercare, and reporting to registries. The contact point for patients with an unclear diagnosis is also located there. An administrative guide and three medical specialists (medical guides) work at the A Center. The spokesperson for the center is Prof. Dr. Beate Winner, who is represented by Prof. Dr. André Reis and Prof. Dr. Regina Trollmann.
The A Center represents the ZSEER externally, for example when submitting applications to establish center structures for rare diseases. It works closely with the associated disease- or disease group-specific specialist centers, the other reference centers for rare diseases in Germany, and self-help groups.
In Bavaria, the ZSEER is a member of the Bavarian Working Group for Rare Diseases (BASE), an association of centers for rare diseases in Bavaria (together with the ZSE Regensburg, ZESE Würzburg, ZSE Munich, LMU, and ZSE TU Munich, as well as the AZeSE at the University Hospital of Augsburg). These are based at the university hospitals in Augsburg, Erlangen, Munich, Regensburg, and Würzburg. Since March 2017, ZSEER has also been a member of the German Working Group of Centers for Rare Diseases (AG ZSE).
The establishment of centers for rare diseases is closely linked to the National Action Alliance for People with Rare Diseases (NAMSE). This is an alliance between the Federal Ministry of Health (BMG), the Federal Ministry of Education and Research (BMBF) and the Alliance for Chronic Rare Diseases (ACHSE e.V.) with 25 alliance partners – exclusively leading and umbrella organisations of the key players in the healthcare sector in the field of rare diseases.
The ZSEER also participates in research activities on the topic of rare diseases. This includes Germany-wide or international registry studies as well as joint projects funded by the BMBF as part of its national support for rare diseases.
