Typ A Centre from the ZSEER
The A-Center of the ZSEER is located at Universitätsstraße 22 in 91054 Erlangen. It supports and coordinates the interdisciplinary activities in patient care, research and teaching in the field of rare diseases with regard to early detection, diagnostics, therapy, aftercare, as well as reporting to registries. The contact point for patients with an unclear diagnosis is also located there. The A-Center has an administrative pilot (Ms. Christin Kolb) and three medical specialists (medical pilots). The spokesperson of the center is Prof. Dr. Beate Winner, she is represented by Prof. Dr. Regina Trollmann and Prof. Dr. André Reis.
The A-Center represents the ZSEER externally, for example in applications for the establishment of center structures for rare diseases. It works closely with the associated disease- or disease group-specific centers of expertise, the other reference centers for rare diseases in Germany, and self-help.
In Bavaria, the ZSEER is a member of the Bavarian Working Group for Rare Diseases (BASE), the association of centers for rare diseases in Bavaria (together with the ZSE Regensburg, ZESE Würzburg, ZSE Munich, LMU and ZSE TU Munich and AZeSE of the University Hospital Augsburg). These are based at the university hospitals in Augsburg, Erlangen, Munich, Regensburg and Würzburg. Since March 2017, the ZSEER has also been a member of the German Working Group of Centers for Rare Diseases (AG ZSE).
The establishment of centers for rare diseases is closely linked to the National Action Alliance for People with Rare Diseases (NAMSE). This is an alliance between the German Federal Ministry of Health (BMG), the German Federal Ministry of Education and Research (BMBF) and the Alliance of Chronic Rare Diseases (ACHSE e.V.) with 25 alliance partners - exclusively leading and umbrella organizations of the major players in the health care system in the field of rare diseases.
The ZSEER also participates in research activities on the topic of rare diseases. On the one hand, this includes Germany-wide or international registry studies as well as collaborative projects funded by the BMBF within the framework of national funding for rare diseases.
